April Worst

April 2018:

I'll be honest with you, April was just the worst. Since September 2017 I have been training to become a Barrister within the legal system of England and Wales. Over the course of nine months I slaved (along with thousands of other Bar students) through thousands of pages of Criminal and Civil Litigation, Professional Ethics, Advocacy, Written skills, Conference skills and Judicial Review. This time last year I was due to be finishing my Bar exams. When I started things in my life were kind of just ticking along. Yes I had chronic migraines but they seemed under control and I was thrilled to be taking the next steps in my professional life. By February-March however, chronic migraines had taken over my life. I was permanently tired, in pain, stressed and anxious.

Chronic Migraines are defined as three or more migraines a week. I was routinely having five+ migraines a week. At the time of my bar exams I had had 21 migrainous days IN A ROW. None of the multiplicity of medications I had been prescribed by my various specialists had done anything. Actually, that's a lie. They HAD done something - a host of different side effects that meant that by the end of each course of medication not only were my migraines no better (in many occasions they were significantly worse) but I had gained an enormous amount of weight, had blood pressure so low that I frequently fainted just from standing up, was losing my hair and had crippling eczema (something I have never experienced) from head to toe. The weight gain brought on a serious depressive dip meaning that I spent most of my time in bed (whether from migraines or depression) which just helped to drop my mood lower and lower.

I want to just take a moment to express that it was not the weight itself that made my mood low, it was the loss of control over my life. Exercise and eating well had become my new normal, my comfort zones. Long gone were the days where I tucked in to a three pack of Krispy Kremes when I had had a bad day. I went for a walk/ run/ yoga/ ballet/ whatever, returned an hour or so later with a clear head and a fresh perspective. Gaining the weight back made exercise that much harder, the beta blockers I was on for my head made my exercise less effective and the associated low blood pressure problems meant that I was literally a ticking time bomb. I would leave each session with my PT Heather and would be sick, or have to sit in my car for half an hour at least to bring my blood pressure up enough to feel safe driving the seven minutes home. My migraines also meant that if I did ANY form of even remotely cardiovascular exercise my head would pound, I would have a migraine fog for 24-36 hours AFTER the proper migraine passed and during that time I was just useless. All of that meant that slowly, so slowly it was barely perceptible, I went from exercising in some form or another every day a week to being all but completely sedentary. The loss of control over my own life was terrifying.

Which brings us back to April and my Bar exams. Exam number 1, Drafting: I woke up in the morning, felt the now far too common pre-migraine, lay in my bed fearful of moving and wept. There was no way on the gods green earth that I was going to be able to do my exam. I tried getting up maybe an hour later, just to see if 'maybe if I eat something it'll go away?' Of course I knew it would not go away. Once it starts there is no stopping it and once I start thinking about how to get it to go away the more I worry and the more I fulfil the migrainous prophecy. I texted my mum (who was downstairs) saying that there was no way it was happening and I would have to apply for mitigating circumstances and defer until August. Neither of us were especially happy about this as we both knew that the sooner I got these high stress exams out of my way the sooner I could recover but we also knew that it was what had to happen. What followed over the next three weeks was a repetition of this morning, over and over. Some kind of unholy Groundhog's day. Let me tell you all, a migraine is no fun. A THREE WEEK migraine is enough to drive even the most well reasoned person to the verge of insanity.

I duly completed my forms, got the necessary medical support and waited for the confirmation. The wait was agonising - 'what if they don't grant my application?', 'what if it didn't arrive in time?!', 'what if I've fucked my chances of my chosen career?!?!' etcetera etcetera etcetera. When the confirmation emails arrived I cried with relief. I told myself I would be ready next time and I started planning my revision timetable anew, seeing a therapist, exploring different avenues and engaging in various homeopathic complementary therapies. Anything that might help. Hell I even got a specific part of my ear pierced in the hopes that it would help (more on this later).

As April ended I cried and railed against the world and hurt all over. I seriously questioned whether my life was worth living daily. This scared me. As a suicidal teenager I had told myself that the world would be better off without me. That I was a burden. That how I felt would never get better. As an adult who had come out on the other side I knew all of that not to be true. But being faced with chronic pain I had the same question go through my head time and again 'What if I am never free of pain again?' I wanted the world to stop. I wanted to be sedated so that maybe I'd have a moment's peace. I thought about ending my life not because I wanted to die but rather because I felt like I was no longer living. Even writing that feels pathetic. I know that there are countless individuals who do suffer and have suffered far far worse than I do but I have come to realise in the last year that suffering should not be a competition. I have found so much support from people who have suffered and have been able to be a support to others myself. In a perverse way, suffering is one of the things that brings people together. It is in the heart of suffering that we find our compassion.

As I close off this post I just want to send a message to anyone experiencing any kind of chronic or hidden illness. I see you. We see you. Your pain, your suffering, is acknowledged. I know how frustrating it is having people say 'oh but you look fine to me'. I know what it is to feel like you're an imposter for saying 'I'm not well' or to feel like you're taking up your doctor's time with a 'fake' illness because perhaps there's physiologically nothing wrong with you or the medical community is still unsure as to whether certain illnesses are 'real'. You know your body better than anyone else. Never let someone convince you otherwise. If something feels wrong you have to advocate for what your body needs whether by doing your research or asking for second or third opinions or simply exploring an alternative. The process of being heard is rarely fun; it can take a lot of time and energy, but when you find someone who DOES believe you and tries to find a workable solution, all that stress will have been worth it if for no other reason than someone else trusts what your body is telling you. Finally, it is vital that you do all you can to care for your mental health as well. There's no point pushing yourself to the breaking point trying to treat your physical health when that is detrimental to your mental health. I can't say that looking after my mental health sooner would have meant that I would have felt physically better sooner or at all, but caring for your mental health is a goal in and of itself and carries its own rewards.

525,600 minutes

Hi guys,

So, as you may have noticed, it has been over a year since I have last posted. I started and stopped writing at least a dozen times. Upon logging in today I saw five different notifications from Uncle Google telling me about EU regulations that have become established in the year since I last posted as well as a reminder of the many draft posts that I began only to abandon, just because.

I think before I actually start writing about anything in particular again I need to just lay out what has been happening in my life. For some of you (even my nearest and dearest) some of this will come as a surprise. If the information in the following posts does come to you as brand new information please understand, I didn't neglect to tell you because I don't love or trust you, I did it because some of this has felt like failure after failure and the embarrassment of even admitting it has been too much to bear.

I started writing these posts on the day I finished my Bar exams, a whole year to the day after I SHOULD have completed them. The reasons why it took an extra year and the associated feelings, stressors and anxieties will be made clear as I examine the last year in chronological order. Leaving my final exam I knew I should be feeling nothing but absolute relief, after all these exams have been plaguing me for over a year! However, what I really felt was confusion. I have lived with the stress and the pain and the anxiety for so long that I genuinely had no clue how to feel, what to be stressed about and just what to do with myself. It's a sorry state of my existence that even when the stressor was gone I couldn't just relax.

The good thing about leaving that exam is that in the weeks leading up to it I had started to see more of my life. Everything had become tunnel vision. My future was exactly this: exam, pupillage, career. The peripheral elements of life (where I'm going next weekend, the wedding I'm attending, holidays, hobbies etc.) had just stopped coming to mind. I could see only that very narrow, very stressful, tunnel. I take comfort in the fact that I decided I wanted to get back to writing and take back control in my life BEFORE the exams were over. As you will see, this is an enormous step for me. I want to use this space now as I regain my enjoyment of the things that used to make me me and try new things on the road to better overall wellness. But first, I have to catch everyone up.

So, if you will allow me, what follows over the next few posts is the last year in my life.